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X-WR-CALDESC:Events for FASD United
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UID:10002093-1777464000-1777471200@fasdunited.org
SUMMARY:International FASD Knowledge Share Collective
DESCRIPTION:An open space to share what you are doing in the field of FASD\, discuss potential interests and ideas regarding recent developments in our states/territories/local areas\, interstate\, international\, or cross-organizational collaborations\, and any other ideas for sharing what has or hasn’t worked\, challenges we’ve experienced\, and how we can learn from one another. The intention is to promote immediate networking and successful connections that can then be furthered through individual collaborations after or in-between Knowledge Share meetings. \nWe meet quarterly via zoom and the day of the week and time of day fluctuate to try to allow participation from various time zones. Meetings are typically recorded so that those who cannot attend can still access the content and discussion. \nSign up instructions at: https://www.fasdcollaborative.com/sig
URL:https://fasdunited.org/event/international-fasd-knowledge-share-collective/
LOCATION:Virtual
CATEGORIES:Open to the Public
ATTACH;FMTTYPE=image/png:https://fasdunited.org/wp-content/uploads/2026/02/Intl-FASDKnowShareLogo.png
ORGANIZER;CN="FASD Collaborative Project":MAILTO:info@fasdcollaborative.com
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260512T130000
DTEND;TZID=America/New_York:20260512T150000
DTSTAMP:20260423T190522
CREATED:20260323T133337Z
LAST-MODIFIED:20260323T133337Z
UID:10002095-1778590800-1778598000@fasdunited.org
SUMMARY:Adult Leadership Collaborative of FASD Changemakers:   Forgotten or Ignored?   FASD as the Adult Orphan of Disability –   Does Anyone Care?
DESCRIPTION:For more than four decades\, adults living with Fetal Alcohol Spectrum Disorder (FASD) have been described as the “orphan child of disability\,” a term originally used by a provincial court judge in British Columbia who repeatedly encountered individuals with FASD in the justice system without appropriate diagnosis\, understanding\, or support. Unfortunately\, this description remains strikingly relevant today. \nIn this workshop\, the FASD Changemakers Adult Leadership Cooperative (ALC) will explore the systemic and societal factors that have contributed to the ongoing marginalization of adults with FASD. Participants will examine how missed or delayed diagnosis\, lack of informed support systems\, and widespread misunderstanding of brain-based disabilities have left many adults with FASD overlooked by service systems designed to help them. \nThrough lived experience perspectives and critical discussion\, the presenters will examine what has gone wrong over the past 40 years and why many adults with FASD continue to fall through the cracks in health care\, social services\, education\, and the justice system. The session will challenge participants to reflect on the roles systems and professionals play in perpetuating or addressing these gaps. \nParticipants will also be encouraged to consider what must change moving forward. By identifying key barriers and exploring practical ways to improve awareness\, response\, and support for adults with FASD\, this workshop aims to shift the conversation from understanding the problem to becoming part of meaningful solutions for the future. \nLearning Objectives: \n\nDefine the concept of the “orphan child of disability” as it relates to adults living with Fetal Alcohol Spectrum Disorder (FASD).\nIdentify systemic barriers that contribute to missed diagnosis\, misunderstanding\, and lack of appropriate support for adults with FASD.\nDescribe how gaps across service systems (health care\, education\, social services\, and justice) impact outcomes for individuals with FASD.\nDiscuss strategies professionals can use to improve recognition\, support\, and response for adults living with FASD.
URL:https://fasdunited.org/event/adult-leadership-collaborative-of-fasd-changemakers-forgotten-or-ignored-fasd-as-the-adult-orphan-of-disability-does-anyone-care/
LOCATION:Virtual
CATEGORIES:Open to the Public,Training
ATTACH;FMTTYPE=image/png:https://fasdunited.org/wp-content/uploads/2026/03/2026-05-12-Changemakers-Forgotton-or-Ignored-PHOTO.png
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