FASD United

Affiliate Access
2025-12-04 16:30 - 17:30, 2025-11-06 16:30 - 17:30 (America/New_York) | Online
The FASD United Affiliate Network Executive Council Meeting is held the 1st Thursday of each month at 4:30 pm Eastern. This meeting is open to Affiliate Executive Council Members only. To view a list of your Executive Council Members, click here: Affiliate Executive Council
Members of the FASD United Affiliate Executive Council will be emailed a zoom link prior to the meeting. To add an agenda item or for questions about the Affiliate Executive Council, email baldwin@fasdunited.org.
For more information on becoming an FASD United Affiliate, go to www.nofasaffiliatenetwork.org/join/

FASD United Weekly Policy Drop-in
2025-12-03 12:00 - 12:30, 2025-11-19 12:00 - 12:30, 2025-11-12 12:00 - 12:30, 2025-11-05 12:00 - 12:30, 2025-10-22 12:00 - 12:30, 2025-10-15 12:00 - 12:30, 2025-10-08 12:00 - 12:30 (America/New_York) | Via Zoom
Do you have a question about advocating for The FASD Respect Act? Want to give and receive updates? This weekly Zoom drop-in session is a great space to do it. The dedicated staff of the FASD United Policy Team will be on hand to answer your questions, give support, and cheer you on!

The Zoom drop-in is held on Wednesdays at Noon Eastern, 11 am Central, 10 am Mountain, 9 am Pacific, 8 am Alaskan, and 6 am Hawaiian time. https://zoom.us/j/94210118165?pwd=[REDACTED]
Meeting ID: 942 1011 8165 Passcode: [REDACTED]

FASD United Policy Forum
2025-11-26 14:00 - 15:00, 2025-10-29 14:00 - 15:00 (America/New_York) | Via Zoom
The monthly forum is a regularly scheduled virtual meeting to brief advocates and guide policy outreach. The meetings are open to all FASD advocates. You can help ensure action on critical FASD legislation by joining the monthly FASD policy virtual forum and preparing to engage with your senators and representatives. Click to join the forums live on Zoom or participate by phone using the number nearest your location.
Meeting ID: 892 5829 4486 Passcode: [REDACTED]
Dial by your location +1 312 626 6799 US (Chicago) ++1 253 215 8782 US (Tacoma) +1 346 248 7799 US (Houston) +1 720 707 2699 US (Denver) +1 312 626 6799 US (Chicago) +1 646 558 8656 US (New York) +1 301 715 8592 US (Washington DC)

Caregiver Support and Resource Navigation Group
2025-11-21 10:00 - 11:30, 2025-11-07 10:00 - 11:30, 2025-10-24 10:00 - 11:30, 2025-10-10 10:00 - 11:30 (America/Vancouver) | Virtual
Participants will help determine the themes and topics covered to best support their needs. Topics may include:
· Sharing the joys and challenges of caregiving for adults or youth transitioning into adulthood who have FASD or similar neurodiversity/disability.
· Exchanging ideas and sharing successes.
· Strengthening the caregiver-child relationship through a better understanding of your youth or young adult.
· Caregiver resource systems navigation (employment, disability services, financial, medical, educational).
· Supporting transitions and helping to navigate changes in school, employment, life, and daily routines.
· Supporting employment, interpersonal skills, recreation, friendships, relationships, regulation, and interdependence.
· Managing caregiver fatigue and avoiding burnout.

Facilitated by Parent Consultant and now retired Key Worker Coordinator Jill Crichton with additional support provided by practicum student clinicians Jasleen Mann and Dana Patterson.

Creating a safe, interactive space for caregivers to connect, share, and celebrate the journey of Caregiving.

WHEN: BI-WEEKLY MEETINGS ON FRIDAYS 10:00 – 11:30 AM, BEGINNING NOV. 8 2024, UNTIL APR. 25 2025
WHERE: VIA ZOOM
COST: $20.00 (+GST) DROP-IN FEE (IF COST IS A CONCERN, CONTACT US FOR ALTERNATIVE OPTIONS.)
For group access and more information, please email admin@fasdinstitute.com

Affiliate Network Meeting
2025-11-20 15:00 - 16:00, 2025-10-16 15:00 - 16:00 (America/New_York) | Online
The FASD United Affiliate Meeting is held on the third Thursday of each month at 3 p.m. Eastern. It is open to individuals from Affiliate organizations only.
Affiliate members will receive an email with Zoom information prior to the meeting. For more information on becoming an FASD United Affiliate, go to www.nofasaffiliatenetwork.org/join/

Affiliate Access
2025-11-20 15:00 - 16:00, 2025-10-16 15:00 - 16:00 (America/New_York) | Online

Strong Fathers Building Safe Homes: A Coaching Circle for Dads Navigating FASD
2025-11-20 11:00 - 12:00, 2025-10-16 11:00 - 12:00 (America/Chicago)
The Papillion Center for FASD is collaborating with Joshua Legg, Pastoral Care & Life Coach to offer a five-week group, TOOL TIME, for fathers parenting children affected by FASD. Completed over a lunch hour via zoom, this is a time to learn, connect and grow with others.
Are you a dad to a child who has been diagnosed with or you suspect is affected by Fetal Alcohol Spectrum Disorders? If so, this training is for you. Grab your spot, group size is limited!

Adult Leadership Collaborative of FASD Changemakers: Lay of the Land Survey #2 Quality of Life Survey in 460+ Adults with FASD
2025-11-18 13:00 - 14:30 (America/New_York) | Virtual
Do not miss this opportunity to hear from the Adult Leadership Collaborative members CJ Lutke, Maggie May, and Katrina Griffin as they present the results of “Lay of the Land Survey #2 Quality of Life Survey in 460+ Adults with FASD”.
In 2019, the ALC did its second Lay of the Land Survey on the quality of life of teens and adults with FASD because they believed there was a significant problem in this area, and that no data existed on the lives of those with FASD in adulthood. This workshop will provide the results of this survey which was completed in 2020. Using the same format as in Survey #1, the survey was designed and developed by the ALC, with questions the ALC knew were important to answer. It includes information on Adverse Childhood Experiences (ACES) and something they developed and call Adverse Continuing Experiences in Adulthood or ACES-A., housing, homelessness, parenting, relationships, education, employment, finances, victimization, etc. The results on 461 adults have been widely presented, including to NIAAA.

FASD : Never Alone
2025-11-08 12:00 - 17:00 (America/Dawson_Creek) | Virtual
This support group is for adults with FASD (18 & up). There will be engaging discussions, education, relationships, therapeutic, resources sharing, networking, and advocacy.

Twice Monthly: Saturdays, 12 p.m. PST

FASD Changemakers: Lay of the Land Survey #1 Health Issues in 500+ Older Teens & Adults with Dx FASD
2025-10-21 13:00 - 14:30 (America/New_York) | Virtual
The first of two published researches with the Adult Leadership Collaborative Changemakers.
It was long suspected that adults with FASD face more health issues than the general population, but research was lacking—mainly because adults were hard to find. In 2016, the ALC launched a 260-question health survey for adults with diagnosed FASD, with only technical software support. Nearly 700 responses came in from people aged late teens to early sixties; 561 were usable. Preliminary results were shared in 2017, final data in 2019, and the survey published in 2020. This workshop shares key findings and how the survey led to several funded multi-site health studies.
Key Takeaways:

Identify common physical and mental health challenges experienced by adults with Fetal Alcohol Spectrum Disorders (FASD), as reported in the ALC survey.
Explain how early identification and documentation of FASD in adulthood can inform treatment planning, service coordination, and client advocacy.
Analyze the implications of the ALC survey findings for clinical practice, including the need for multidisciplinary approaches and improved access to care for adults with FASD.

Presenters:
CJ Lutke, ALC FASD Changemakers, Vancouver, BC

CJ Lutke is a respected FASD advocate, speaker, and systems change leader. Diagnosed with full FAS at birth, she was adopted at age five, along with her siblings who also have FASD. For over 20 years, she’s led trainings, presented at conferences, and contributed to FASD research.
A founding member of the FASD Changemakers Adult Leadership Committee, CJ co-led the Lay of the Land surveys on adult health and quality of life. She serves on advisory groups, including a BC family court reform committee, and recently joined a national CAMH project on FASD and suicidality.
CJ mentors young adults with FASD, blogs for NOFASD Australia, and is the adoptive parent of a 12-year-old son with FASD. Her mission is to empower others with FASD to lead change.
Maggie May, ALC FASD Changemakers, Ireland

Maggie May, 28, was diagnosed with FAS at age five while in foster care, where she was raised. Born and based in Ireland, she is a well-known FASD speaker and advocate. She moderates several online groups, including the largest global support group for teens and adults with FASD, and mentors youth with FASD in multiple countries.
A member of the FASD Changemakers Adult Leadership Committee for five years, Maggie works with FASD UK and serves on the expert advisory committee for a University of Rochester health app for adults with FASD. Her mission is to shift how FASD is viewed, promote inclusive environments, and empower others with FASD to find their voice and purpose.

Canada FASD Conference 2025
2025-10-21 08:00 - 2025-10-23 13:00 (America/New_York) | Virtual
The Canada FASD Conference is coming to Toronto, Ontario on October 21-23, 2025. This national conference on FASD brings together different people from across the country and internationally who hold valuable perspectives on FASD and
prevention of FASD. The theme for Canada FASD Conference 2025 conference is Shaping the Future of FASD: From Evidence to Action.
With over 600 attendees expected, this three-day event brings together healthcare professionals, social workers, justice and legal professionals, educators, counsellors, researchers, policy makers, and those with direct or indirect lived or living experience to connect and collaborate. This conference provides a secure and open environment to share diverse perspectives, valuable experiences, new research, and best and promising practices. We encourage you to be part of it!

Understanding Fetal Alcohol Spectrum Disorders (FASD) from Birth to Age 5
2025-10-20 12:00 - 14:00 (America/New_York) | Virtual
Learn learn to recognize early signs, understand developmental impacts, and gain practical tools to support families.
This training introduces the impact of Fetal Alcohol Spectrum Disorders (FASD) on children from birth through age five. Participants will gain a broad understanding of how prenatal alcohol exposure can affect brain development, physical health, and early learning. The session highlights early signs and challenges while offering practical approaches to support children and families in everyday settings.

Learning Objectives:

Identify the key characteristics and developmental challenges associated with FASD in children from birth to age five.
Recognize early signs and symptoms that may indicate the presence of FASD in young children.
Apply supportive strategies and interventions that promote healthy growth, learning, and family well-being in children living with FASD.

Presenter:
Kathryn Shea, LCSW, FASD United Board Member
Kathryn Shea is a licensed clinical social worker with over 40 years of experience working with children with serious emotional and behavioral disorders and fetal alcohol and drug effects. She received her Bachelor’s degree in Psychology and her Master’s degree in Social Work from the University of Kentucky. She served as the President and CEO of The Florida Center for Early Childhood in Sarasota, FL for 12 years, whose mission is the healthy development of young children, their families, and communities. Kathryn is a past president of the Florida Association for Infant Mental Health and has been very involved in developing and expanding Florida’s Early Childhood Court initiative. Ms. Shea currently serves on the board of FASD United (formerly NOFAS) and is an independent consultant at the local, state, and national level. Kathryn has received numerous awards for her work in infant mental health, FASD, and child advocacy.

FASCETS Center for Neurodiversity TRAINING Brain-Based Conditions Including FASD: Understanding & Application of the FASCETS Brain-Based Approach
2025-10-14 10:00 - 13:00, 2025-10-07 10:00 - 13:00 (America/Los_Angeles)
The FASCETS brain-based approach explores the concept that we each have strengths and challenges based on how our brain works. These can be directly informed by our genetic make-up or by pre or postnatal events. In both our 15-hour upcoming training, we discuss the FASCETS brain-based or neurobehavioral approach which links brain function with behaviors, leading to supports that work and make a difference for all brain-based differences such as FASD, ADHD, Autism, Dementia, TBI and more!
Join us for a deep dive into the 15-hour Live webinar to learn more about the FASCETS brain-based approach and discover tools to implement it in all settings in order to create person-specific supports regardless of the source of the brain-based difference: FASD, ASD, ADHD, autism, dementia, acquired brain injuries…) It is effective for all people across their entire lifespan.
If you are someone who lives with, works with or knows someone with a confirmed or suspected brain-based difference, this workshop is for you!
To learn more about these and all of our other upcoming trainings and to register, visit: https://www.fascets.org/book-online

The Importance of Screening for Prenatal Alcohol Exposure
2025-10-09 11:30 - 14:00, 2025-10-09 11:30 - 13:30 (America/New_York) | Virtual
Presented in collaboration by The Florida Center and Proof Alliance, this webinar will explore the impact of prenatal alcohol exposure on child development, learning, and behavior. Designed for healthcare professionals, nurses, public health workers, health educators, social workers, community health workers, doulas, and anyone providing prenatal care, the training highlights the importance of screening and documentation to guide effective support. It includes practical examples, questions, and protocols to help connect families with appropriate resources and services.
