Researchers from the Healthy Generations Lab at the University of Calgary, led by Dr. Tamara Bodnar, are seeking individuals with FASD to participate in a health and mental health research study. Participants must be able to visit the study site at the University of Calgary in person for approximately 3 hours. As a thank you for your time, you will receive a gift card.

Adults with FASD age 19 +
In-person required (3 hours approx)
Compensation
External opportunity

Click Here to Learn More.

BRAIN-online is a new web-based screening tool that assesses cognitive and behavioral features known to be associated with fetal alcohol spectrum disorders (FASD). It was developed by Dr. Sarah Mattson and her team at the San Diego State University Center for Behavioral Teratology as a first step to determine if you or someone you care for might have an FASD.

Anyone 18+ interested
Minors allowed with parent permission
Online, free assessment
External Opportunity

Click Here to Learn More.

Through the Fetal Alcohol Spectrum Disorders (FASD) Research Lab at the University of Minnesota headed by Dr. Jeffery Wozniak and through Dr. Blake Gimbel. This study is for children and adolescents who were exposed to alcohol before birth. This study tests the use of the web-based neuropsychological assessment tool BRAIN-Online which can be completed at your home.

8-16 years of age with a history of confirmed PAE and/or FASD
Recently completed a neuropsychological evaluation OR is on the waiting list for one
Online
Compensation
External opportunity

Click Here to Learn More.

FMF Connect Pro through the University of Rochester teaches providers how to do routine screening of prenatal alcohol exposure with all clients, apply DSM-5 diagnosis for FASD, and support families using the FMF Connect app.

 All mental health providers and trainees serving children ages 3-12 and their families
CE credits provided for psychology, social work, and counseling
Actively recruiting in New York (recruitment opens Aug-Dec in California).
External Opportunity

Click Here to Learn More.

This international study, conducted by Dr. David Junior Gilbert and his team at The University of Salford in the UK, focuses on addressing the complexities of Fetal Alcohol Spectrum Disorders (FASD) within the justice system.

18 or older & diagnosed with FASD or PAE
Caregiver of someone with FASD ages 11-17
Based in Australia, Canada, New Zealand, US, or UK
External opportunity

Click Here to Learn More.

Glimpses of FASD is a living experience opportunity for those living with FASD to share their story, in their own words. These short videos will help inform research about PAE and FASD. FASD United is especially interested in highlighting the successes, strengths, and achievements of people with FASD, as well as challenges. In sharing these positive stories through a strengths-based lens, our goal is to counter the harmful effects of stigma and bias. 

Anyone with PAE and/or FASD can participate
Online and quick
Qualitative
Conducted by FASD United (internal opportunity)

Click Here to Learn More.

The CASA Family Court Judges Study through the University of Rochester explores how CASA volunteers can aid in identifying children with FASD and facilitating access to services.

1 Interview
Only recruiting judges at this time (CASA staff and personnel are completed)
Compensation
External Opportunity

Click Here to Learn More.

The Thriving Study through the University of Rochester is looking for young adults with FASD to inform what can help adults with FASD thrive.

People with FASD ages 18-25
2 virtual interviews and participation in goal-setting activity and network tool
Compensation
External Opportunity

Click Here to Learn More.

The DBT-A online survey through the University of Rochester will help improve mental health therapy and approaches for teens with FASD.

Teens with FASD and/or their caregivers can participate
Online
External Opportunity

Click Here to Learn More