How can you get involved?
September is a great time to raise awareness of Fetal Alcohol Spectrum Disorders and to celebrate the strengths, talents and successes of the estimated one in twenty Americans who have a FASD. Throughout the month of September and specifically on September 9th, which is international FASD Awareness day there are numerous ways to engage in advocacy, support, build community and raise awareness of FASD.
Engage in Advocacy
From your hometown, to our nations capital, there are some easy and impactful ways to advocate for FASD.
- Send a letter of support for The FASD Respect Act in honor of FASD Awareness month to your two Senators and one Representative by sending a text. Simply text the letters PCMMYP to the number 50409 and follow the prompts. The FASD Respect Act if passed would provide much needed supports, services and interventions for the FASD community. We are closer than ever before to getting this landmark legislation passed.
- Schedule a meeting with your federal legislators to ask them to support the FASD Respect Act. We’ll help! Find out how to go about it here.
Support
Give a shout out or learn more about how best to support individuals diagnosed with FASD or prenatal alcohol exposure.
- Know a youth diagnosed with FASD? Show them your support and appreciation of their strengths and talents by sending them a Stars for Starla Youth Recognition Award.
- Attend a training. Our events calendar has an ever growing list of events and trainings on FASD. Also check out the great list of trainings at www.fasdcollaborative.com.
- Consider a donation. Funding for FASD typically covers research and prevention efforts, help FASD United to continue to provide advocacy and support through a one time or recurring donation.
- Know someone who could use some help? Direct them to the Family Navigator for referrals to resources and supports in their area.
Build Community
FASD can feel isolating, but you are not alone! Here are some ways to connect with or build community in your area.
- Volunteer. Did you know that many members of the FASD United Affiliate Network are 100% volunteer ran? Find out who the Affiliate is in your area and see if they have any volunteer work you can take on. Don’t have an affiliate? Consider approaching local non-profits offering FASD related services and supports and asking them to join or consider forming your own.
- Participate in Run FASD. Run FASD is a virtual 5k that you can run, walk, swim, ride or roll created by Self Advocate, Rebecca Tillou. Either on your own or by joining one of the number of groups coming together to build community. To find group runs in your area or to register, click here.
Raise Awareness
Despite the prevalence of FASD, it’s still thought of as rare. By raising the profile of FASD and prenatal alcohol exposure in a non-stigmatizing way, we can all raise awareness of FASD while increasing the level of support and understanding for people diagnosed with FASD or prenatal alcohol exposure in all of our communities. Here are some ideas on how you can help.
Share Your Story
Did you send a press release? Host a training? Have an amazing event? Let us know and we can share your story to inspire others.
Tag Us on Social Media
@FASDUnited and use the hash tags #FASD #FASDMonth #FASDUnited #FASDRespect #RunFASD
Send Us An Email
information(at)fasdunited.org
Send us those photos, a summary of your event, a poem, a song – how did you spread awareness? We’d love to know!