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Research Opportunities
FASD and PAE research opportunities are available below.
Researchers, recruit participants through FASD United by clicking:
Research Bank
You can view accumulated published research or submit published research to our weekly newsletter.
Keep scrolling to find an open study…
Read to see if you or your loved one would be a good fit.
CIFASD Research
FASD United is a proud member of CIFASD, the Collaborative Initiative on Fetal Alcohol Spectrum Disorders. This consortium aims to inform and develop effective interventions and treatment approaches for FASD, through multidisciplinary research involving basic, behavioral, and clinical investigators and projects.
Sleep and PAE
San Diego State University
Dr. Jennifer Thomas and Jackie Soja
Details Here
They are interested in assessing young adults with a history of PAE and typically developing young adults. Participants will wear an OURA ring (a ring that measures activity/sleep) to monitor sleep at home for two weeks. They will also complete questionnaires and an online behavioral test at home.
Criteria:
- Adults with FASD 18-35 years old
- Typically developing adults 18-35 years old
- Compensation
PAE and Health
University of Calgary
Dr. Tamara Bodnar
Details Here
Researchers from the Healthy Generations Lab are seeking individuals with FASD to participate in a health and mental health research study. Participants must be able to visit the study site at the University of Calgary in person for approximately 3 hours. As a thank you for your time, you will receive a gift card.
Criteria:
- Adults with FASD age 19 +
- In-person required (3 hours approx)
- Compensation
BRAIN-Online
San Diego State University
Dr. Sarah Mattson and her team
Details Here
BRAIN-online is a new web-based screening tool that assesses cognitive and behavioral features known to be associated with fetal alcohol spectrum disorders (FASD). It was developed by the SDSU Center for Behavioral Teratology as a first step to determine if you or someone you care for might have an FASD.
Criteria:
- Anyone 18+ interested
- Minors allowed with parent permission
- Online, free assessment
BRAIN-Online Study
University of Minnesota
Dr. Jeffery Wozniak and Dr. Blake Gimbel
Details Here
Through the Fetal Alcohol Spectrum Disorders (FASD) Research Lab, this study is for children and adolescents who were exposed to alcohol before birth. This study tests the use of the web-based neuropsychological assessment tool BRAIN-Online which can be completed at your home.
Criteria:
- 8-16 years of age with a history of confirmed PAE and/or FASD
- Recently completed a neuropsychological evaluation OR is on the waiting list for one
- Compensation
- Online
FMF Connect Pro
University of Rochester
Dr. Christie Petrenko and Dr. Julianne Myers
Details Here
FMF Connect Pro through the University of Rochester teaches providers how to do routine screening of prenatal alcohol exposure with all clients, apply DSM-5 diagnosis for FASD, and support families using the FMF Connect app.
Criteria:
- All mental health providers and trainees serving children ages 3-12 and their families
- CE credits provided for psychology, social work, and counseling
- Actively recruiting in New York (recruitment opens Aug-Dec in California).
- Online
Other PAE/FASD Research
FASD United also offers opportunities from other researchers across the nation and even internationally. Look through the criteria and details to assess whether you want to participate.
Details Here
This international study, conducted by Dr. David Junior Gilbert and his team at The University of Salford in the UK, focuses on addressing the complexities of Fetal Alcohol Spectrum Disorders (FASD) within the justice system.
Criteria:
- 18 or older & diagnosed with FASD or PAE
- Caregiver of someone with FASD ages 11-17
- Based in Australia, Canada, New Zealand, US, or UK
Integration of PAE and FASD in Graduate Nursing Curricula
University of Rochester
Dr. Lynn Cole
Details Here
The primary goal is to describe what content about prenatal alcohol exposure (PAE) and fetal alcohol spectrum disorders (FASD) is currently included in the curricula of United States (U.S.) graduate nursing program curricula. The project aims to understand barriers and facilitators to enhance curriculum content on PAE and FASD. Data is collected through survey responses
Criteria:
- Directors of U.S. Graduate Nursing programs in Pediatric Primary Care, Family, Psychiatric Mental Health, Women’s Health, Neonatal, or Adult-Gerontology NP or midwifery
- Compensation
- Survey
Qualitative Case Studies of Educators and Service Providers, Parents and Caregivers Experiences in the Hawai’i Pre-K to 12th Grade Public Schools System
University of Hawai’i Thompson School of Social Work & Public Health
Sina P. Pili, PhD candidate
Details Here
This research has been approved by the University of Hawai’i IRB office and all collected participant information will be kept confidential and anonymized.
For parents & caregivers, click here.
For educators & service providers, click here. All collected participant information will be kept confidential and anonymized.
Criteria:
- Parent or caregiver of an FASD student enrolled in or graduated from a Hawai’i public school in the past 3 years
- Full time or retired educator (in the last 3 years) in the Hawai’i public school system and have experience working with FASD students
- Virtual Interview (60-90 minutes) + open-ended questions
- Compensation
Policies for Reproductive Outcomes in Medicaid–Improving Services for Enrollees with Intellectual and Developmental Disabilities
Boston University School of Public Health
Eric Rubenstein, Ashley Scott, Alianna Higgins
Details Here
The goal of this research study is to understand the healthcare experiences of pregnant people with intellectual and developmental disabilities (IDD). We hope this study will help improve the health care and health outcomes of pregnant people with IDD. Interested participants can contact us a promidd@bu.edu to request an interest form.
Criteria:
- Have a documented IDD diagnosis
- 18 years or older
- Be currently pregnant or pregnant within the last 10 years
- Lived in the U.S. while pregnant
- Enrolled in Medicaid while pregnant
- Interviews (60-90 minutes)
- Compensation
Trigeminal Nerve Stimulation for Children With PAE
UCLA Division of Child & Adolescent Psychiatry
Details Here
This is a study of a treatment called Trigeminal Nerve Stimulation (TNS) which is FDA-approved for children with ADHD. We are testing it in children with ADHD and PAE.
TNS is a new treatment that provides a very low amount of stimulation to nerves in the forehead during sleep. Participants place a strip that looks like a band-aid across the forehead each night before going to sleep. This is done every night for 4 weeks.
Criteria:
- Children 8-12 years old showing inattention, impulsivity, or hyperactivity and who have been exposed to alcohol prenatally
- Children do not need to have a prior ADHD or FASD diagnosis to be eligible.
- 3 In-person visits and evaluations
- The treatment is done by the parent or caregiver at home.
- Compensation
Glimpses of FASD
FASD United
Media and Communications Hub
Details Here
Glimpses of FASD is a living experience opportunity for those living with FASD to share their story, in their own words. These short videos will help inform research about PAE and FASD. FASD United is especially interested in highlighting the successes, strengths, and achievements of people with FASD and their challenges. In sharing these positive stories through a strengths-based lens, we aim to counter the harmful effects of stigma and bias.
Criteria:
- Anyone with PAE and/or FASD can participate
- Minors allowed with parent permission
- Qualitative