FASD United is excited to highlight MJ, an FASD self-advocate who participated in our Glimpses of FASD initiative featuring individuals living with FASD sharing their own stories in their own words. The videos are a great way for people to learn more about FASDs and what it’s like to live with them in just a few minutes.   

MJ was diagnosed with FASD as an adult, but looking back, she realized that there were signs earlier on. Due to the societal stigma surrounding FASD, MJ says she felt shame and still battles with it as she learns more about her disability. Although MJ mentions struggles that come from trauma-responses, brain- based differences, and lack of understanding, her strengths lie in language and emotional intelligence. We applaud MJ for choosing to share her story with FASD United and ultimately promoting a more just, FASD-informed world.

Watch the video on our YouTube channel here.

Anyone who lives with FASD or prenatal substance exposure is welcome to participate.  You don’t need to have a formal diagnosis or any prior experience.  We want to hear from everyone, from children to adolescents to adults. Minors under age 18 are welcome to be included and must have parent or guardian permission. 

Our Media & Communications Hub team will conduct interviews. You can book your interview by filling out a simple form and selecting a 15-minute block of time to record a video.  All filming will happen on Zoom, and we’ll edit the final video to about 1-2 minutes. To participate, a media consent form must be filled out before the filming session, either by the participant (18+) or by the participant’s parent or guardian.

Visit the Glimpses of FASD website for more information on booking the meeting, preparing for the Zoom recording session, and tips on how to get set up and what to expect during the interview. 

FASD deserves a seat at the table. “Glimpses of FASD” helps explore our mission through interviews with those with living experience. In doing so, we can more accurately assess which tables FASD should be a part of and in what ways.