Tag: Living experience
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Change the Environment, Transform the Outcome: Supportive Strategies for Growth and Success in Neurodiverse Kids, Teens and Young Adults
Grounded in decades of combined lived experience raising children with FASD into young adulthood and years of professional training, coaching, mentoring, and conferences, this training offers a practical, compassionate look at what truly supports neurodiverse children and the caregivers who love them. Participants will explore how the emotional and sensory atmosphere of the home influences…
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Lived Experience Matters: Fetal Alcohol Spectrum Disorders (FASD) through the Voice of a Self-Advocate
With honesty and humor, Alex shares his personal story, describing what his diagnosis means to him and how it has shaped his life, from school and friendships to independence and advocacy. He offers insight into both the struggles he faces and the “superpowers” that come with his unique brain. His mother adds a parent’s perspective,…
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How to Support Families Raising Children with FASD
When a child has a Fetal Alcohol Spectrum Disorder (FASD), the impact extends far beyond parents and caregivers. Grandparents, aunts, uncles, siblings, family friends, and community members often want to help but may struggle to understand why traditional parenting approaches do not seem to work or why families make certain decisions or why caregivers sometimes…
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Deep in the Heart of FASD
Join Texas FASD Network for a virtual rally kicking off FASD Awareness Month! Hear from Laura Bousquet and Emily Hargrove, who will share about how the community can support individuals with FASD and their families.
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The Hidden Disability – Radio Documentary – Available for download
This special documentary takes an in-depth look at FASD through the voices of experts, families, and individuals living with the condition. Produced by Clare FM’s Programme Director & Head of Operations Padraic Flaherty. Funded by Coimisiún na Meán. Duration: 1 Hour
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Adult Leadership Collaborative of FASD Changemakers: Forgotten or Ignored? FASD as the Adult Orphan of Disability – Does Anyone Care?
For more than four decades, adults living with Fetal Alcohol Spectrum Disorder (FASD) have been described as the “orphan child of disability,” a term originally used by a provincial court judge in British Columbia who repeatedly encountered individuals with FASD in the justice system without appropriate diagnosis, understanding, or support. Unfortunately, this description remains strikingly…
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ALC of FASD Changemakers: FASD – It’s all About the Dominos: The Big Five
In this workshop, the International Adult Leadership Collaborative (ALC) of FASD Changemakers will explain and talk about what they call “inside the box thinking” behavior to describe how to better understand and think about FASD to support those who are living with it. This information is what they have learned as adults about a way…
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ALC of FASD Changemakers: Behind the Mask – Unravelling Grief in People with FASD: It’s Complicated
This presentation explores the lifelong and often unrecognized grief experienced by individuals with FASD, beginning in childhood and continuing into adulthood. Drawing on the lived experience and professional expertise of the ALC of FASD Changemakers, it examines how ongoing, unacknowledged losses and “don’t ask, don’t tell, never talk about it” patterns of denial impact mental…
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FASD Changemakers: Their Journey and Impact
Challenges and Changes: The Story of How the FASD Changmakers Came to Be and Do What They Do” Twenty years ago, two adults with FASD came together to challenge the system’s status quo. They decided to do something no one really thought people with FASD could do – change the message because if they didn’t…
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A Family Perspective on the FASD Diagnosis
Written by Laura Bousquet A parent, self-advocate, and part of the FASD United team, Laura responds to proposed changes to FASD diagnosis recently published in The Lancet Child & Adolescent Health. Upon reading this article, I was struck by a sense of invalidation—of the symptoms, the condition itself, and the profound impact it can have. The…