It is with profound sadness that we share with the community the passing of Liz Kulp, a beloved FASD self-advocate. Liz was a beacon of light, known for her kindness, passion, and care for those around her. Her dedication and spirit have touched people everywhere, and she leaves a legacy of compassion for others and enthusiasm for FASD advocacy. Though we may be experiencing profound grief, we find solace in memories and the impact she made on us all. We also extend our sincerest sympathies to her family and loved ones.

Liz Kulp was diagnosed with FASD as a young teenager. By recognizing her challenges and building on her strengths, Liz graduated from high school and pursued independent adulthood. Alas, she discovered that although the supportive environment of her family had fostered independence, she was not fully prepared for the wide array of complexities of a world built for neurotypical individuals. With vulnerability and honesty, Liz explored her own mind and gave an important look at the non-apparent challenges of growing up for people with FASD through her written works and speaking.

Liz has been on the forefront of FASD self-advocacy for years and has authored or co-authored eight books. One of her most beloved written works, The Best I Can Be: Living with Fetal Alcohol Syndrome or Effects (2013) spotlights her experience having an FASD diagnosis as she dives into her brain and meaningfully expresses her living experience of prenatal alcohol exposure. This honest reflection leans into hope and the beauty of life, while emphasizing a prominent disability that many people do not understand or recognize. Liz’s insightful book is a proud recipient of the Mom’s Choice Award for Best Young Contributing Author.

In a society where FASDs and those living with them are frequently stigmatized or misrepresented, Liz Kulp remained determined to emphasize the importance of listening to those living with disabilities. Liz and her family have much to be proud of, even in the face of this tragic loss. It is with heavy hearts that FASD United and the community at large say farewell, and thank you, to this powerful self-advocate.

Liz Kulp’s obituary can be viewed here.