Tag: Self-Advocate
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Lived Experience Matters: Fetal Alcohol Spectrum Disorders (FASD) through the Voice of a Self-Advocate
With honesty and humor, Alex shares his personal story, describing what his diagnosis means to him and how it has shaped his life, from school and friendships to independence and advocacy. He offers insight into both the struggles he faces and the “superpowers” that come with his unique brain. His mother adds a parent’s perspective,…
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Adult Leadership Collaborative of FASD Changemakers: Lay of the Land Survey #2 Quality of Life Survey in 460+ Adults with FASD
Do not miss this opportunity to hear from the Adult Leadership Collaborative members CJ Lutke, Maggie May, and Katrina Griffin as they present the results of “Lay of the Land Survey #2 Quality of Life Survey in 460+ Adults with FASD”. In 2019, the ALC did its second Lay of the Land Survey on the…
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In Remembrance of FASD Self-Advocate Liz Kulp
It is with profound sadness that we share with the community the passing of Liz Kulp, a beloved FASD self-advocate. Liz was a beacon of light, known for her kindness, passion, and care for those around her. Her dedication and spirit have touched people everywhere, and she leaves a legacy of compassion for others and…