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FASD Changemakers: Their Journey and Impact

Challenges and Changes: The Story of How the FASD Changmakers Came to Be and Do What They Do”
Twenty years ago, two adults with FASD came together to challenge the system’s status quo. They decided to do something no one really thought people with FASD could do – change the message because if they didn’t …. who would? Because it is what you DO with your experience that changes things… NOT the experience itself. Today, they number 16 core leadership members in what is now the Adult Leadership Collaborative (ALC) of FASD Changemakers and lead the work that is changing the direction and thinking in the field of FASD. As they say, “FASD is an origin story; it is NOT a destination.” So, this is the story of how it all came to be, what are the lessons learned, how does it work, and like all those stories thought to be fairy tales, begins with “Once Upon a Time”…. Presenters are Adult Leadership Committee (ALC) FASD Changemakers CJ Lutke from Vancouver, and Maggie May from Ireland.



