FASD United is excited to launch “Glimpses of FASD,” an exciting new short video initiative featuring individuals living with FASD sharing their own stories in their own words. The videos are a great way for people to learn more about FASDs and what it’s like to live with them in just a few minutes.   

We are kicking off the series with a powerful video featuring Brenna, a passionate self-advocate living with FASD. Brenna talks about her talent for playing the piano and some of the tools that have helped her excel, learn, and grow while living with FASD. 

Beginning this May, FASD United will be accepting participants who are interested in sharing their stories.  These videos are an opportunity for people to hear directly from people living with FASD and better understand and appreciate the living experience of FASD. 

Anyone who lives with FASD or prenatal substance exposure is welcome to participate.  You don’t need to have a formal diagnosis or any prior experience.  We want to hear from everyone, from children to adolescents to adults. Minors under age 18 are welcome to be included and must have parent or guardian permission. 

The purpose of these videos is to allow people living with FASD to have a seat at the table and to educate the systems of care and the public. We hope that by sharing your story, society will gain a valuable tool to attain support services and meaningfully inform research. Our hope, too, is to get policies enacted that will ultimately improve the quality of life for individuals living with FASD across the nation.

Interviews will be conducted by the team of our Media & Communications Hub, Andy Kachor and Casidee Gonzales. You can book your interview with either Andy or Casidee by filling out a simple form and selecting a 15-minute block of time to record a video.  All filming will happen on Zoom, and we’ll edit the final video to about 1-2 minutes. In order to participate, a media consent form must be filled out prior to the filming session, either by the participant (18+) or by the participant’s parent or guardian.

Visit the Glimpses of FASD website for more information on booking the meeting, preparing for the Zoom recording session, and tips on how to get set up and what to expect during the interview. 

FASD deserves a seat at the table. “Glimpses of FASD” helps explore our mission through interviews with those with living experience. In doing so, we can more accurately assess which tables FASD should be a part of and in what ways.