Tag: lived experience
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ALC of FASD Changemakers: FASD – It’s all About the Dominos: The Big Five
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In this workshop, the International Adult Leadership Collaborative (ALC) of FASD Changemakers will explain and talk about what they call “inside the box thinking” behavior to describe how to better […]
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ALC of FASD Changemakers: Behind the Mask – Unravelling Grief in People with FASD: It’s Complicated
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This presentation explores the lifelong and often unrecognized grief experienced by individuals with FASD, beginning in childhood and continuing into adulthood. Drawing on the lived experience and professional expertise of […]
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Adult Leadership Collaborative of FASD Changemakers: Lay of the Land Survey #2 Quality of Life Survey in 460+ Adults with FASD
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Do not miss this opportunity to hear from the Adult Leadership Collaborative members CJ Lutke, Maggie May, and Katrina Griffin as they present the results of “Lay of the Land […]
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FASD Changemakers: Lay of the Land Survey #1 Health Issues in 500+ Older Teens & Adults with Dx FASD
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The first of two published researches with the Adult Leadership Collaborative Changemakers. It was long suspected that adults with FASD face more health issues than the general population, but research was […]
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Canada FASD Conference 2025
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The Canada FASD Conference is coming to Toronto, Ontario on October 21-23, 2025. This national conference on FASD brings together different people from across the country and internationally who hold […]
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FASD Changemakers: Their Journey and Impact
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Challenges and Changes: The Story of How the FASD Changmakers Came to Be and Do What They Do” Twenty years ago, two adults with FASD came together to challenge the […]
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University of Minnesota – Prenatal Alcohol Exposure Web-based Brain Assessment Study
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Fetal alcohol spectrum disorders (FASD) affect an estimated 2 to 5 percent of children nationwide, yet many go undiagnosed due to high assessment costs, long wait times, stigma, and limited […]
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Yes I Am: An Impactful Follow-up to “Yes I Can”
2023 marked the beginning of a hard-hitting campaign called Yes I Can. It’s aim was to provide inspiring content that highlighted the importance of strengths-based research AND lived experience. As […]