FASD United is proud to share a collection of video recordings from the 10th International Research Conference on FASD, held in Seattle, Washington in April 2026.  The videos feature self-advocates and cover a range of important topics in the FASD field presented at main plenary sessions, including the role of paternal drinking to a pregnancy, the complexity of…

We are thrilled to welcome the Ohio Department of Behavioral Health (DBH) as the newest member of the FASD United Affiliate Network, now comprised of 49 organizations united to further FASD awareness, provide support, and improve the quality of life for those affected by prenatal alcohol exposure.  The Ohio Department of Behavioral Health (DBH) “works to ensure every Ohioan has access to quality behavioral health care”…

Rebecca Tillou, an adult with FASD and powerful self-advocate says, “I came across this quote last year and wrote it down to use sometime.  I think now is perfect:  “Shame thrives in darkness but withers in light. Let’s be the light.”   Neurodiversity is about empowerment and respect.  At its core, the term neurodiversity refers to “a world where neurological differences are recognized…

The American Bar Association (ABA) has selected William “Billy” Edwards as the 2025 winner of the Paul G. Hearne Award for Disability Rights. A member of the FASD United Board of Directors, Edwards is a Deputy Public Defender in the Neurocognitive Disorders Unit of the Office of the Los Angeles County, California, Public Defender, and…

Earlier this month, FASD United released its National Education Survey. This year, a small group of educators and FASD advocates worked to enhance the portion of the survey focused on educators and those in the larger education system. Previous years’ surveys have demonstrated that students with FASD and their families often face barriers and challenges…

The Policy Forum originally scheduled for November 26th has been rescheduled for Wednesday, December 3rd at 2:00 PM ET to accommodate for Thanksgiving travel. November provided opportunities to meet with Members of Congress and discuss advocacy strategies, and we hope you will join us for an engaging discussion on what is to come in 2026. The December 3rd Forum will…

Family physicians are much more than medical service providers. In fact, “they often get to know families better than nearly anyone else outside of the family,” according to Corban Wehr of the American Academy of Family Physicians (AAFP).  “These doctors see parents as well as their children and follow children as they grow up and have…

Rebecca Tillou is on the move again.  A runner since middle school, an FASD self-advocate starting with her diagnosis at age 34, and the founder of Move FASD, Rebecca is not slowing down.  What started as “Run FASD” in 2021 as a community fundraiser has grown this year into Move FASD, a national series of…

National FASD Impact Week is coming up this September 15-17 in Washington, DC.  Join advocates, clinicians, researchers, and professionals from around the country.  Here are 5 ways that YOU can make an impact:  1. SPEAK UP – Raise your voice and be heard by our Nation’s leaders  Join a group of passionate FASD advocates for…

Dr. Petrenko is a leading FASD researcher who is developing innovative mobile apps to support people with FASD and their families.  Working with CIFASD for almost 10 years, Christie’s career is dedicated to making the research deliver meaningful positive impacts for people with FASD.  Dr. Christie Petrenko’s enthusiasm and support for CIFASD (the Collaborative Initiative…