Author: Andy Kachor
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FASD NPN Spotlight: American Academy of Family Physicians (AAFP)
Family physicians are much more than medical service providers. In fact, “they often get to know families better than nearly anyone else outside of the family,” according to Corban Wehr of the American Academy of Family Physicians (AAFP). “These doctors see parents as well as their children and follow children as they grow up and have…
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Reflections on National FASD Impact Week from FASD United Staff
As the FASD United team gears up for this September’s National FASD Impact Week, staff members are sharing their reflections on some of our past Impact Week events and activities. An incredible opportunity to bring the FASD community together during FASD Awareness Month in September, Impact Week always features a strong series of workshops, advocacy,…
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Self-Advocate Rebecca Tillou is Moving the Community Forward with “Move FASD”
Rebecca Tillou is on the move again. A runner since middle school, an FASD self-advocate starting with her diagnosis at age 34, and the founder of Move FASD, Rebecca is not slowing down. What started as “Run FASD” in 2021 as a community fundraiser has grown this year into Move FASD, a national series of…
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FASD NPN Spotlight: University of Texas at Austin’s HBRT and National Association of Social Workers (NASW)
“Thank you so much for all you do,” a social worker told Diana Ling right after she introduced herself. Diana, Senior Program Manager at the Health Behavior Research and Training Institute (HBRT) at The University of Texas at Austin (UT-Austin), was exhibiting at the national conference of the National Association of Social Workers (NASW) last…
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5 Ways YOU Can Make an Impact at This September’s FASD Impact Week
National FASD Impact Week is coming up this September 15-17 in Washington, DC. Join advocates, clinicians, researchers, and professionals from around the country. Here are 5 ways that YOU can make an impact: 1. SPEAK UP – Raise your voice and be heard by our Nation’s leaders Join a group of passionate FASD advocates for…
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Attendees Reflect on This Year’s Successful FASD Research Conference
The FASD community came out in force for the 9th International Research Conference on FASD, hosted by FASD United this past March in Seattle, Washington. Attendees, including leading international experts on FASD, researchers/scientists, dedicated clinicians, advocates, families, and self-advocates, reflected on their experiences. We’d like to share some of these reflections, many of which were…
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FASD Researcher Dr. Christie Petrenko on the Role of CIFASD and Developing Apps to Support People with FASD
Dr. Petrenko is a leading FASD researcher who is developing innovative mobile apps to support people with FASD and their families. Working with CIFASD for almost 10 years, Christie’s career is dedicated to making the research deliver meaningful positive impacts for people with FASD. Dr. Christie Petrenko’s enthusiasm and support for CIFASD (the Collaborative Initiative…
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Now Diagnosed with an FASD, Leading Trainer and Parent Barb Clark Embraces a New Chapter in Her FASD Journey
“This sure is different when it’s me on the hot seat,” Barb Clark told herself as she repeated back a list of 16 items. This was the fourth and final time she was asked to name as many items as she could remember. Again, she caught herself adding a word that she knew wasn’t on…
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FASD United Welcomes Five Incredible Members of Our Board of Directors
The FASD United team is thrilled to welcome five exceptional leaders to our Board of Directors: Michael Keawe Anderson, Karen A. Poteet, Jaqueline Cortez Wang, Kate Boyce Reeder, and William J. Edwards. These talented leaders exemplify leadership, service, and accountability and are committed to advancing progress for people with FASD. Our new Board Members…
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Disability, Addiction and Alcohol Use: Lessons for an Empowered FASD Community
As we wrap up Alcohol Awareness Month this April, we are taking a deep dive into disability and alcohol use disorder, two crucial topics that are intertwined when it comes to FASD and prenatal alcohol exposure (PAE). The stigma around disability is compounded by the stigma around alcohol addiction. People with disabilities, including people with…