Challenges and Changes: The Story of How the FASD Changmakers Came to Be and Do What They Do” Twenty years ago, two adults with FASD came together to challenge the system’s status quo. They decided to do something no one really thought people with FASD could do – change the message because if they didn’t […]
The first of two published researches with the Adult Leadership Collaborative Changemakers. It was long suspected that adults with FASD face more health issues than the general population, but research was lacking—mainly because adults were hard to find. In 2016, the ALC launched a 260-question health survey for adults with diagnosed FASD, with only technical software […]
Do not miss this opportunity to hear from the Adult Leadership Collaborative members CJ Lutke, Maggie May, and Katrina Griffin as they present the results of “Lay of the Land Survey #2 Quality of Life Survey in 460+ Adults with FASD”. In 2019, the ALC did its second Lay of the Land Survey on the […]
This presentation explores the lifelong and often unrecognized grief experienced by individuals with FASD, beginning in childhood and continuing into adulthood. Drawing on the lived experience and professional expertise of the ALC of FASD Changemakers, it examines how ongoing, unacknowledged losses and “don’t ask, don’t tell, never talk about it” patterns of denial impact mental […]
In this workshop, the International Adult Leadership Collaborative (ALC) of FASD Changemakers will explain and talk about what they call “inside the box thinking” behavior to describe how to better understand and think about FASD to support those who are living with it. This information is what they have learned as adults about a way […]
