FASD United

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6 events found.

lived experience

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  • October 2025

  • Tue 21

    Canada FASD Conference 2025

    October 21, 2025 @ 8:00 am – October 23, 2025 @ 1:00 pm EDT
    Virtual   +1 more

    The Canada FASD Conference is coming to Toronto, Ontario on October 21-23, 2025. This national conference on FASD brings together different people from across the country and internationally who hold valuable perspectives on FASD and prevention of FASD. The theme for Canada FASD Conference 2025 conference is Shaping the Future of FASD: From Evidence to […]

  • Tue 21

    FASD Changemakers: Lay of the Land Survey #1 Health Issues in 500+ Older Teens & Adults with Dx FASD

    October 21, 2025 @ 1:00 pm – 2:30 pm EDT
    Virtual

    The first of two published researches with the Adult Leadership Collaborative Changemakers. It was long suspected that adults with FASD face more health issues than the general population, but research was […]

    Free
  • November 2025

  • Tue 18

    Adult Leadership Collaborative of FASD Changemakers: Lay of the Land Survey #2 Quality of Life Survey in 460+ Adults with FASD

    November 18, 2025 @ 1:00 pm – 2:30 pm EST
    Virtual

    Do not miss this opportunity to hear from the Adult Leadership Collaborative members CJ Lutke, Maggie May, and Katrina Griffin as they present the results of “Lay of the Land Survey #2 Quality of Life Survey in 460+ Adults with FASD”. In 2019, the ALC did its second Lay of the Land Survey on the […]

    Free
  • January 2026

  • Wed 21

    ALC of FASD Changemakers: Behind the Mask – Unravelling Grief in People with FASD: It’s Complicated

    January 21 @ 1:00 pm – 3:00 pm EST
    Virtual

    This presentation explores the lifelong and often unrecognized grief experienced by individuals with FASD, beginning in childhood and continuing into adulthood. Drawing on the lived experience and professional expertise of the ALC of FASD Changemakers, it examines how ongoing, unacknowledged losses and “don’t ask, don’t tell, never talk about it” patterns of denial impact mental […]

    Free
  • February 2026

  • Tue 17

    ALC of FASD Changemakers: FASD – It’s all About the Dominos: The Big Five

    February 17 @ 1:00 pm – 3:00 pm EST
    Virtual

    In this workshop, the International Adult Leadership Collaborative (ALC) of FASD Changemakers will explain and talk about what they call “inside the box thinking” behavior to describe how to better […]

    Free
  • May 2026

  • Tue 12

    Adult Leadership Collaborative of FASD Changemakers: Forgotten or Ignored? FASD as the Adult Orphan of Disability – Does Anyone Care?

    May 12 @ 1:00 pm – 3:00 pm EDT
    Virtual

    For more than four decades, adults living with Fetal Alcohol Spectrum Disorder (FASD) have been described as the “orphan child of disability,” a term originally used by a provincial court […]

    Free
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FASD United

FASD United

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