Tag: lived experience
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Fetal Alcohol Spectrum Disorders (FASD) and Digital Dangers: A Self-Advocate’s Tips on Staying Safe
Live Virtual Zoom Training Sponsored by The Florida Center and the State of Florida, Department of Health Date: Friday, December 11, 2026 Time: 11:00-12:30pm EST ( 10-11:30pm CST, 9-10:30am MST, 8-9:30am PST) Cost: FREE DESCRIPTION: Join Alex, a young adult and self-advocate with Fetal Alcohol Spectrum Disorder (FASD), and his mother, Pam, as they share…
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Adult Leadership Collaborative of FASD Changemakers: Forgotten or Ignored? FASD as the Adult Orphan of Disability – Does Anyone Care?
For more than four decades, adults living with Fetal Alcohol Spectrum Disorder (FASD) have been described as the “orphan child of disability,” a term originally used by a provincial court judge in British Columbia who repeatedly encountered individuals with FASD in the justice system without appropriate diagnosis, understanding, or support. Unfortunately, this description remains strikingly…
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ALC of FASD Changemakers: FASD – It’s all About the Dominos: The Big Five
In this workshop, the International Adult Leadership Collaborative (ALC) of FASD Changemakers will explain and talk about what they call “inside the box thinking” behavior to describe how to better understand and think about FASD to support those who are living with it. This information is what they have learned as adults about a way…
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ALC of FASD Changemakers: Behind the Mask – Unravelling Grief in People with FASD: It’s Complicated
This presentation explores the lifelong and often unrecognized grief experienced by individuals with FASD, beginning in childhood and continuing into adulthood. Drawing on the lived experience and professional expertise of the ALC of FASD Changemakers, it examines how ongoing, unacknowledged losses and “don’t ask, don’t tell, never talk about it” patterns of denial impact mental…
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Adult Leadership Collaborative of FASD Changemakers: Lay of the Land Survey #2 Quality of Life Survey in 460+ Adults with FASD
Do not miss this opportunity to hear from the Adult Leadership Collaborative members CJ Lutke, Maggie May, and Katrina Griffin as they present the results of “Lay of the Land Survey #2 Quality of Life Survey in 460+ Adults with FASD”. In 2019, the ALC did its second Lay of the Land Survey on the…
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Yes I Am: An Impactful Follow-up to “Yes I Can”
2023 marked the beginning of a hard-hitting campaign called Yes I Can. It’s aim was to provide inspiring content that highlighted the importance of strengths-based research AND lived experience. As we move into a busy Quarter Two, it’s our honor to present the follow-up to this campaign, “Yes I Am!” This new 13-week series will…