Author: FASD United

  • A Family Perspective on the FASD Diagnosis 

    Written by Laura Bousquet  A parent, self-advocate, and part of the FASD United team, Laura responds to proposed changes to FASD diagnosis recently published in The Lancet Child & Adolescent Health. Upon reading this article, I was struck by a sense of invalidation—of the symptoms, the condition itself, and the profound impact it can have. The…

  • FASD Pioneer, Mentor, and Friend Kenneth Warren, Dies at 81

    Kenneth Warren, who served in numerous senior positions at the National Institute on Alcohol Abuse and Alcoholism (NIAAA) from 1976 until his retirement in 2015, including as Acting Director, and who is among the most important figures in both the scientific understanding and public recognition of fetal alcohol spectrum disorders (FASD), passed away on August…

  • FASD United Continues to Make a Difference with Two New Affiliates

    At FASD United, we are committed to making a difference in the lives of people with FASD. We pride ourselves on our successful advocacy efforts and strive to provide support for those affected by FASD. That’s why we are excited to announce two new members of the FASD United Affiliate Network – Dream Acres in…

  • FASD United Collaborating on FASD Initiative in the U.S. Military

    FASD United is partnering with the Center for Health Services Research (CHSR) at the Uniformed Services University of the Health Sciences (USUHS) on a new four-year federally funded fetal alcohol spectrum disorders (FASD) health services research initiative in the Military Health System (MHS). Launched with a kickoff workshop in Washington, D.C. on September 21, 2022,…

  • FASD and World Teachers Day

    FASD United is excited to celebrate this year’s World Teachers’ Day, held annually on October 5th.  Established in 1994, World Teachers’ Day is an opportunity to consider issues related to teachers and teaching.  We know that teachers and schools are extremely important to children and families living with FASD and that through appropriate education services,…

  • FASD United Statement in Response to Reports on Nikolas Cruz and FASD

    While FASD United does not typically comment on specific individuals affected by fetal alcohol spectrum disorders (FASD), due to the publicity surrounding this case the organization has issued the following statement: Nikolas Cruz admitted killing 17 people at Marjory Stoneman Douglas High School in Parkland, Florida, in February 2018, and reports indicate that his sentencing…

  • FASD United Marks the Retirement of FASD Champion Sr. Suzette Fisher

    Sister Suzette Fisher is retiring on June 3, 2022. For over three decades, Sr. Suzette has been a tireless advocate for individuals living with FASD and a true champion in the national effort to prevent alcohol exposed pregnancies. Sr. Suzette has served with the Sisters of Notre Dame in Toledo, Ohio for over 50 years,…

  • Run FASD 2022 is Looking for Sponsors

    Run FASD Sponsors are organizations or individuals who want to show their support for the FASD community. Our sponsors are forward thinkers and agree that individuals with FASD have strengths, talents, and gifts in addition to their disability. Would you or your organization be interested in leading the way with a sponsorship for 2022? The…

  • Study Finds Low Levels of Prenatal Alcohol Exposure Affect Brain Development

    A major new study published in JAMA Network Open finds that small amounts of prenatal alcohol exposure can cause structural brain alterations in children. This study reinforces the longtime medical and scientific community consensus that no amount of alcohol is without risk during pregnancy. Researchers set the average exposure for the study as one drink…

  • A Tribute to FASD Champion and Dean of the House, Don Young

    By Mike “Keawe” Anderson and Kate Boyce FASD United honors the legacy and memory of U.S. Representative Don Young who passed away Friday while returning to his home state of Alaska. Congressman Young had served as Alaska’s sole U.S Representative for 49 years, and in his last term was the lead cosponsor of H.R. 4151,…