Category: News
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FASD United Launches Research Bank Highlighting Key FASD Research
FASD United is excited to announce the launch of a new resource to quickly and easily find key pieces of research in the FASD field: the FASD United Research Bank! What is the Research Bank? The Research Bank is a comprehensive database of the leading research in the areas of FASD and prenatal alcohol…
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A Family Perspective on the FASD Diagnosis
Written by Laura Bousquet A parent, self-advocate, and part of the FASD United team, Laura responds to proposed changes to FASD diagnosis recently published in The Lancet Child & Adolescent Health. Upon reading this article, I was struck by a sense of invalidation—of the symptoms, the condition itself, and the profound impact it can have. The…
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Article Published on the State of FASD Care Across the Military Health System
We are excited to share the news that an article was published in the journal Military Medicine on “Mapping the Fetal Alcohol Spectrum Disorder Continuum of Care Across the Military Health System.” This in-depth article is the product of an intensive data collection and analysis process conducted by leading experts at the Uniformed Services University…
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FASD Impact Week Strengthens Community and Advances the FASD Field
Last week, FASD United proudly hosted FASD Impact Week in Washington, DC. Over the course of three jam-packed days (September 16, 17, and 18), advocates, researchers, and families came together to organize, strategize, learn, and celebrate. Through workshops, a symposium, an advocacy-filled “Hill Day,” film screening, and a gala celebration, the FASD community showed up…
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Advocates Alex and Clara Educate Their City Council on FASD
Alex and Clara O’Keeffe, two powerful youth self-advocates for FASD, were the highlight of their latest City Council meeting. The brother and sister team spoke at the Kent, Washington council meeting on September 3rd to mark FASD Awareness Month. While sharing their personal story and educating the council members on FASD, they made a stirring…
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Reflections on a Decade of Powerful FASD United Gala Speeches
This article is by Andy Kachor, FASD United Communications Director As we get ready for our upcoming FASD United Red Shoes Gala this September 16th, I’d like to share some of my personal highlights from our past Galas over the years. The first Gala I attended, in 2011, featured a powerful speech from former U.S. Senator…
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FASD United Welcomes New Affiliate Director: Musa Kamara
Musa Kamara has started as FASD United’s new Affiliate Director and we could not be more excited to welcome him. Musa Kamara is a project management professional, social impact entrepreneur, and a student in the Pivot Program at Georgetown University’s McDonough School of Business. He was born in Freetown, Sierra Leone, and raised in Prince…
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Red Shoes Gala: Staff Sentiments
The Red Shoes Gala is an event that sparks excitement and support for the FASD community, and, as our largest fundraising event of the year, for the work of FASD United. As we give FASD a seat at the table we want to emphasize building a supportive community and how it feels to be around…
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FASD Pioneer, Mentor, and Friend Kenneth Warren, Dies at 81
Kenneth Warren, who served in numerous senior positions at the National Institute on Alcohol Abuse and Alcoholism (NIAAA) from 1976 until his retirement in 2015, including as Acting Director, and who is among the most important figures in both the scientific understanding and public recognition of fetal alcohol spectrum disorders (FASD), passed away on August…