Category: News
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Celebrating a Family Navigator Milestone: 1,000 Requests in 2024!
Written by Heather French, FASD United’s Director of Family Navigation and Resources As we close out 2024 and mark the third year of our Family Navigator program, I want to take a moment to celebrate a special milestone: we’ve received our 1,000th request for support this year! It’s incredible to look back on how far…
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FASD Research Conference Awarded Grant to Fund Attendance of Young Investigators
FASD United has some exciting news to share! We are excited to announce that the National Institute on Alcohol Abuse and Alcoholism (NIAAA) has funded a conference grant, 2R13AA028176-04, to assist a limited number of individuals with partial travel support to present at the 9th International Research Conference on FASD in March 2025. To qualify for…
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2024 Stars for Starla Ornament Now Available!
This Season of Giving, please consider supporting FASD United and our mission to empower the FASD community by purchasing our beautiful Stars for Starla holiday ornament! For a donation of $20 or more to our Stars for Starla program, you will receive our annual ornament! Featuring a light, winter blue ceramic base and purposeful design,…
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New Book from Self-Advocate Emily Travis Hargrove!
FASD Self-Advocate Emily Travis Hargrove, an active member of the ALC FASD Changemakers has written and released a book! FASD is my Superpower: Helping Kids Understand the Strengths of Their Diagnosis is a short book written to help kids living with FASD understand the power and strength of their FASD diagnosis, which has historically been…
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New Affiliate Alert – CAMP: A FASD Community
We are so excited to announce the newest addition to the FASD United Affiliate Network: CAMP: A FASD Community! Located in Illinois, CAMP: A FASD Community is dedicated to providing children and adolescents aged 9-18 diagnosed with or suspected to have an FASD a positive and safe space to grow. At FASD United, our mission…
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FASD United and NIAAA Collaborate on Webinar Series
We are excited to announce that FASD United and NIAAA (National Institute on Alcohol Abuse and Alcoholism) are teaming up for a series of three informative and insightful webinars. Registration is free and open to all, simply click below to register on Zoom. Leading experts from NIAAA will discuss the latest medical research and public…
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Educating Professionals During Invisible Disabilities Week
Written by Laura Bousquet, a parent, self-advocate, and part of the FASD United team As a caregiver of someone impacted by Fetal Alcohol Spectrum Disorder (FASD), I’ve learned firsthand how important it is to approach professionals with empathy and understanding when raising awareness about this invisible disability. FASD is often misunderstood, or worse, completely overlooked,…
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FASD United Launches Research Bank Highlighting Key FASD Research
FASD United is excited to announce the launch of a new resource to quickly and easily find key pieces of research in the FASD field: the FASD United Research Bank! What is the Research Bank? The Research Bank is a comprehensive database of the leading research in the areas of FASD and prenatal alcohol…
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A Family Perspective on the FASD Diagnosis
Written by Laura Bousquet A parent, self-advocate, and part of the FASD United team, Laura responds to proposed changes to FASD diagnosis recently published in The Lancet Child & Adolescent Health. Upon reading this article, I was struck by a sense of invalidation—of the symptoms, the condition itself, and the profound impact it can have. The…
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Article Published on the State of FASD Care Across the Military Health System
We are excited to share the news that an article was published in the journal Military Medicine on “Mapping the Fetal Alcohol Spectrum Disorder Continuum of Care Across the Military Health System.” This in-depth article is the product of an intensive data collection and analysis process conducted by leading experts at the Uniformed Services University…