Category: Uncategorized
-
Videos from International FASD Research Conference Feature Experts and Advocates
FASD United is proud to share a collection of video recordings from the 9th International Research Conference on FASD, held in Seattle, Washington in March 2025. Recordings cover a range of important topics in the FASD field presented at main plenary sessions, including the role of paternal drinking to a pregnancy, lifestyle factors and FASD,…
-
FASD United Presents at AUCD National Conference
FASD United is proud to take part in the AUCD (Association of University Centers on Disabilities) conference in Washington, DC Nov. 3-6 as a member of the planning committee and an exhibitor. The AUCD Special Interest Group (SIG) on FASD hosted a Pre Conference event in collaboration with the AUCD 2024 Conference on Saturday, November…
-
Advocacy Alert – Your FASD Living Experience is Needed for a Report to Congress
Major Advocacy Alert: An agency of the Federal Government (the Government Accountability Office or GAO) wants to hear how your disability affects your health care. Responses to a short survey will inform a report to Congress. TAKE THE SURVEY HERE. This is a huge opportunity for the FASD community to have our voices heard. Imagine…
-
New Affiliate Alert – CAMP: A FASD Community
We are so excited to announce the newest addition to the FASD United Affiliate Network: CAMP: A FASD Community! Located in Illinois, CAMP: A FASD Community is dedicated to providing children and adolescents aged 9-18 diagnosed with or suspected to have an FASD a positive and safe space to grow. At FASD United, our mission…
-
Addressing the Recommended Changes to FASD Diagnosis Published in The Lancet
An article by a group of developmental pediatricians in Canada published this fall in the pediatric journal The Lancet Child & Adolescent Health raises major concerns about the use of fetal alcohol spectrum disorder (FASD) as a diagnostic term. The paper “Asking difficult questions about fetal alcohol spectrum disorder in the context of the child, the mother, and…
-
FASD Pioneer, Mentor, and Friend Kenneth Warren, Dies at 81
Kenneth Warren, who served in numerous senior positions at the National Institute on Alcohol Abuse and Alcoholism (NIAAA) from 1976 until his retirement in 2015, including as Acting Director, and who is among the most important figures in both the scientific understanding and public recognition of fetal alcohol spectrum disorders (FASD), passed away on August…
-
Happy Autism Acceptance Day, From the FASD Community!
To acknowledge the day, we hear from FASD United’s own Emma Baldwin, who has words as an autistic self-advocate on how the FASD community and the autistic community can support each other’s advocacy. As we are working to give FASD a seat, we must acknowledge who else is sitting at the table– especially when it…
-
Give FASD a Seat at the Table: Our Mission for 2024
In 2023, the FASD community actively engaged in advocacy, education, and awareness initiatives. Noteworthy events included the emphasis on real-life experiences with Yes I Can, growth of the Affiliate Network, the National FASD Impact Week, featuring a congressional briefing in Washington, D.C., expansion of the Family Navigator program, re-introduction of the FASD International Research Conference,…
-
January is National Birth Defects Awareness Month!
Welcome to 2024, a new year of information, excitement, and growth. However, January’s awareness month hasn’t changed- It’s National Birth Defects Awareness Month. FASD impacts as many as 1 in 20 individuals, and according to the CDC, 1 in 7 pregnancies (14%) are alcohol-exposed. Birth defects like FASD are structural changes present at birth that…
-
A Neurodiverse Lens on How to Handle the Holidays and Extended Family
Family relationships can be difficult to navigate, like any kind of interpersonal connection. They are especially difficult because we are eager to appease, care for, and trust those related to us. Seeing extended family has a nuance of unfamiliarity within the innate familiarity of family. Interactions with extended family may seem more stressful or anxiety-inducing…